SMA & DMD KIDS
STICHTING
STICHTING
We believe that financial barriers should never stand in the way of a child's right to life-saving treatment. Our mission is to provide an unshakeable bridge of support for families battling SMA and DMD globally.
Spinal Muscular Atrophy (SMA) and Duchenne Muscular Dystrophy (DMD) are severe neuromuscular diseases that progressively weaken the muscles. While groundbreaking treatments and gene therapies exist today, they come with astronomical costs, often making them inaccessible to the families who need them the most.
Families face an impossible race against time, forced to organize complex global fundraising campaigns while simultaneously caring for a child with critical medical needs. The logistical, legal, and financial burdens are overwhelming.
"That is where Stichting SMA & DMD Kids steps in. We take on the burden of transparent fund management, so parents can focus on what truly matters: their child."
As a registered Stichting in the Netherlands (KvK: 99654334), our operational model is strictly regulated. Our mission relies on trust, and we earn that trust through uncompromising legal and financial clarity.
We guarantee that 100% of the funds raised for a specific child are directly allocated to that child’s medical treatment and essential care. Every contribution is transferred in full to the designated treatment account, ensuring complete transparency and responsible stewardship of donations.
To prevent any confusion, every child supported by our foundation is assigned a dedicated, separate bank sub-account. Donors can be absolutely certain their contribution goes to the intended recipient.
Funds are never transferred to personal accounts. To ensure total security and intended use, all treatment costs are paid directly to authorized hospitals and medical providers via official invoices.
A world where a diagnosis is met with immediate action, not financial despair. We fight for a future where every child receives the care they deserve.
Our relationship with families is governed by strict, mutually agreed legal contracts to protect the rights of the child, the family, and the donors.
Before any fundraising begins, a comprehensive trilingual (Dutch, English, Turkish) contract is signed. This establishes the rules of fund management and secures the family's rights.
Parents sign an explicit "Family Information and Consent Form", ensuring they fully understand the process, how funds will be held, and how payments will be executed.
We operate under European GDPR standards, ensuring that all medical records, family identities, and campaign data are handled with the highest level of privacy and security.
The journey is long, but together we can provide the resources needed to save lives. Join us in making a profound impact today.
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