SMA & DMD Kids

SMA & DMD KIDS

STICHTING

Ana içeriğe atla

SMA & DMD Kids Stichting

Header Component | SMA & DMD Kids Stichting
Privacy Policy | SMA & DMD Kids Stichting
Data Protection

Privacy Policy

Stichting SMA & DMD Kids is committed to protecting the privacy and security of the personal data of our donors, families, and volunteers in accordance with the GDPR (AVG).

1. Introduction

This Privacy Policy explains how Stichting SMA & DMD Kids collects, uses, and shares your personal data when you interact with us through our website, campaigns, or direct services. As a foundation established in the Netherlands, we strictly adhere to the General Data Protection Regulation (GDPR), known in the Netherlands as the Algemene Verordening Gegevensbescherming (AVG).

2. Data We Collect

Donors

Name, contact details, bank account number (IBAN), and transaction history for the purpose of processing donations and issuing tax certificates (ANBI).

Families and Patients

Personal identifiers, medical records (diagnosis, hospital pro-forma invoices), and legal representative information required for campaign coordination and hospital payments.

Website Users

IP addresses, browser type, and interaction data collected through cookies to enhance website performance and security.

3. Purpose of Processing

  • Managing and transparency reporting of specific child fundraising campaigns.
  • Execution of direct payments to hospitals and medical equipment providers.
  • Compliance with legal obligations under the Netherlands Civil Code and Tax Law (ANBI requirements).
  • Informing supporters about foundation activities and impact.

4. Sharing of Information

We do not sell or rent your personal data. Information is only shared with:

  • Hospitals and specialized clinics involved in the child's treatment plan.
  • Banking institutions (ABN AMRO) for transaction execution.
  • Governmental authorities where required by Dutch tax or non-profit regulations.
  • Third-party processors (like web hosting or email services) under strict data processing agreements.

5. Your Rights

Under the GDPR, you have the following rights regarding your data:

Right to Access
Right to Rectification
Right to Erasure (Forget)
Right to Object

To exercise these rights, please contact us at info@smadmdkids.org.

6. Data Retention

We retain personal data only for as long as necessary to fulfill the purposes for which it was collected, or as required by statutory retention periods (typically 7 to 10 years for financial records as mandated by Dutch tax law).